Showing posts with label world psoriasis day. Show all posts
Showing posts with label world psoriasis day. Show all posts

October 26, 2017

Facts about Psoriasis

Do you know that there is World Psoriasis Day? Yes, this is a worldwide event where people around the world celebrate the WPD to give voice to millions of people who have psoriasis and I’m one of those people who have psoriasis

In the Philippines, we have National Awareness Week from October 23-29 since 2011 via Presidential Proclamation. But before that, PsorPhil is already celebrating World Psoriasis Day every year. People who have psoriasis, doctors, family and other supporters gather together to spread awareness about this skin condition.

This year, it will be celebrated on October 29, 2017 at San Andres Sports Complex. I haven’t joined all the parade but I was able to attend 2010, 2012, 2014 and hopefully this year, I can attend WPD event. 

If you have psoriasis or if you know someone who has psoriasis, let them know that there is a PsorPhil group or different clubs around the Philippines where you can join so you won’t feel alone. I am a member of Asian Psorclub so if you live in Laguna, Cavite, Las Pinas, Muntinlupa, Paranaque or anywhere in South, you can join our group. 

Anyway, since this is National Awareness Week let me inform you about psoriasis. I saw this flyer while I was cleaning. This is the flyer that we’re giving away during our Word Psoriasis Day walk.



Psoriasis in Numbers

Psoriasis affects 1-3% of the world’s population. (Clin. Dermatol. 2006;24;438-47) 
1.8 million Filipinos may have psoriasis. Psoriasis affects adult males and females equally. 
Studies have shown that 36-71% of patients with psoriasis have one relative who is also affected by psoriasis. 
Up to 10-20% of patients with plaque psoriasis also experience psoriatic arthritis. Psoriatic arthritis develops in persons aged 35-55 years old. 
Approximately 50% of psoriasis patients >65 years old have at least 3 comorbidities and -67% have 2 or more comorbities, -10% of patients have ocular signs (blepharitis, conjunctivitis) which is more common in men than in women. (R. Arffa, MD, emedicine.com 2009) 
On the average, people with severe psoriasis have shorter life span of 4 years than patients without psoriasis, 3.5% years for men and 4.4 years for women. (Arch Dermatol. 2007;143(12):1493-1499)

Facts about Psoriasis 

What is psoriasis? 

Psoriasis is a common, chronic, relapsing, inflammatory skin disorder with a strong genetic basis. It is characterized be red, raised, itchy patches, with silvery scales, which can occur on any part of the body. 

Psoriasis is not an infection and therefore is not contagious. 

What causes psoriasis? 

The exact cause of psoriasis is still undetermined. Psoriasis occurs when the immune system sends out faulty signals that speed up the growth cycle of skin cells. Again, psoriasis is not caused by an infection and not contagious. 

What triggers psoriasis? 

The development of psoriasis has undoubtedly a genetic component, but certain environmental factors may also trigger the disease. These factors may include physical trauma, infections, stress, drug, alcohol, and cold climate. 

Is there a cure for psoriasis? 

At present, doctors cannot cure the disease, or even modify the course illness. Current treatments do not affect disease activity. This means that if the disease is active, then relapse will occur as soon as treatment is discontinued whatever therapy is used. 

However, psoriasis can be cleared with treatment that is currently available. 

Other Important Information about Psoriasis 

Psoriasis, being a common, chronic, complex inflammatory disease shares immunological features with other serious health disorders. 

Recent studies suggest that moderate to severe psoriasis is associated with comorbidities like metabolic syndrome and its components (obesity, diabetes, hypertension, hypertriglyceridemia), cardiovascular disease, Chron’s disease, chronic obstructive lung disease, depression, and inflammatory arthritis among others. 

Considering the link between psoriasis and comorbidities, it pertinent that a patient be aware of importance of regular follow-ups to their health care providers in order to be monitored for the said risk factors. It is also important for patients to adapt healthy lifestyle choices, including diet and exercise, to help prevent the development of comorbidities. 

Aside from these serious medical disorders, people with psoriasis are faced with a psychological and emotional burden aggravated by lack of awareness regarding the disease. Many of them face discrimination in public places like the hair salon, riding public transportation, workplace, swimming pools, and the like. It is important that people be made aware that psoriasis is not contagious and cannot be passed on by physically interacting with a person with psoriasis. Psychological and social support from family members, friends and support groups are very significant in decreasing the isolation of patient feels and increasing his/her confidence in living well with psoriasis.

October 29, 2014

Building a Better World for Filipinos with Psoriasis

I was in my fourth-year college when I was diagnosed that I have psoriasis and sad to say that it has no cure yet. At that time, I had a mild case of psoriasis so I can say that I have still a normal life because people cannot see my psoriasis yet. I can do anything and I can wear any clothes, but things change after I gave birth to my son. 

I have psoriasis all over my body and I can’t even count them. I experienced severe psoriasis last year, see the story here.  Having this skin condition really changed my life and I always wish that someday I would have normal skin again. So I can do anything and I can wear anything I want. 

I’m grateful that my family and friends accept and support my skin condition. I’m also a member of Asian PsorClub and PsorPhil group so I know that I’m not alone in this battle. 

Every year, PsorPhil celebrates World Psoriasis Day and I really try my best to be part of this event. So far I’ve attended three funwalk since 2010. I attended the funwalk in 2010 and 2012 and last Sunday, Oct. 26, 2014.

Just to give you an idea “World Psoriasis Day is a yearly event dedicated to people with psoriasis/psoriatic arthritis. This is a global event wherein people around the world perform activities to give an international voice to the 125 million people with psoriasis/psoriatic arthritis. 

IFPA ( International Federation of Psoriasis Associations) would like to raise awareness about psoriasis so people won’t be discriminated. It aims to improve access to treatments, increase understanding about the skin condition and unite different psoriasis groups so people with psoriasis will get the attention and consideration they deserve.” 

In the Philippines, since 2011 we have National Psoriasis Awareness Week (23-29 October) via Presidential Proclamation. Last October 26, 2014, we celebrated World Psoriasis Day at San Andres Complex. People with psoriasis, families, doctors, and other supporters were there. 


Aside from the funwalk, PSorPhil group offered

1. FREE Consultations c/o Philippine Dermatological Society Doctors with Free medicines (as supply lasts)
2. FREE consultations with RHEUMATOLOGISTS c/o PRA (for PsA)
3. FREE BP measurement, Sugar BMI Cholesterol Urinalysis, and consultation with same-day results c/o Pfizer
4. FREE Chair massage service 

There were also cheering competitions by different psoriasis clubs, raffles and Zumba party. 


It was a fun event and I hope we can really build a better world for Filipinos with Psoriasis because we want a normal life. Psoriasis is not contagious.

October 23, 2012

FunWALK and FunGAMES


World Psoriasis Day is a yearly event for those people who have psoriasis like me so last Sunday we went to Maysilo Circle in Mandaluyong City to join the Funwalk and Fungames of PsorPhil. Actually, not only psoriasis patients were present because even doctors, sponsors, supporters, and other volunteers joined us to promote the global theme “Put Psoriasis on The Agenda Now” and of course to tell the whole world that psoriasis is not contagious.

I became a member last 2010 and this was my second time joining the funwalk. I was happy because my husband and my son always accompany me even if it is more than an hour of walking. 

Photo from PsorPhil group
After the fun walk we had parlor games and we were lucky to win the sack race game. Go Asian PsorClub!

Click here if you want to know more about psoriasis. 

If you have psoriasis, join our group here and register here.

October 21, 2012

World Psoriasis Day 2012

Leo Pharma Asia’s Top Executive to join National Psoriasis Week

Ricky Teo, a top-ranking executive of LEO Pharma-Asia will grace this year’s celebration of the National Psoriasis Awareness Week at the Kaban ng Hiyas of the Mandaluyong City Hall.

The annual event, a testament to the importance of Presidential Proclamation No. 179 declaring every last week of October as the National Psoriasis Week, will carry the global theme “Put Psoriasis on The Agenda Now” for this year’s celebration.

Despite his hectic schedule, Teo, Leo Pharma-Asia’s Area Director for South Asia, will join the national events as a show of support for the region. Teo is responsible for Leo Pharma’s markets in the Philippines, Malaysia, Thailand, Taiwan, Singapore, Hongkong, Vietnam, Indonesia, and Sri Lanka.

Teo will discuss the topic of the stigma of psoriasis why a great number living with it take their own lives to escape the suffering that it entails and why is this the only solution they see. He will also post the question of why in a world where beautiful and clear skin is the benchmark of beauty, psoriasis patients are being treated negatively because of the inflamed, thick red scaly lesions found in their skin.

Most people think that the physical symptoms of psoriasis patients are contagious and people tend to ostracize patients with psoriasis. These instances lower the self-esteem of the patients and they shy away from the public, hiding from the judging eyes of the outside world. They hide in their homes and most patients fall into depression.

About 30% of Psoriasis patients develop painful and debilitating psoriatic Arthritis. Their quality of life is lessened and can’t do some of the simple things that most people take for granted in their daily lives. Recent global studies also show that psoriasis patients are at higher risk of developing other co-morbid conditions such as hypertension, diabetes, cardiovascular diseases, Crohn’s Disease, and other chronic conditions.

Psoriasis Philippines, along with Leo Pharma and Teo, advocates for the Filipinos with psoriasis who are estimated to be between 1 to 2 million. Every year Psorphil celebrates World Psoriasis Day together with 64 other countries.

This year's Psoriasis Awareness Week is also supported by Pfizer Phils, Janssen Pharmaceuticals, and Galderma Phils. and Pascual Laboratories.

March 09, 2011

World Psoriasis Day 2010

It has been 9 years since I had psoriasis, sad to say that there is still no cure for this skin disease but it is not contagious. It is really a struggle for me to accept that I have this because there is no one in the family who has psoriasis so I still have no clue where did I inherit this.
Two years ago when I started to feel depressed because it is all over my body, I really feel so sad because I am doing everything just to prevent the flare-up, I tried all the topical medications and even phototherapy but there is no improvement. Having psoriasis is not easy because the medicines and treatments are not cheap.
But I still thank God for giving me the strength to go on and making me realize that I am not alone. It is true that I am not alone, for the past few years, I thought that I am the only one who have this in the Philippines, and thank God that I was able to join Asian Psoriasis Club, where I met other people who have psoriasis. It gives me relief that there is someone who can really understand my situation.
So when I heard that there is Fun walk on October 20, 2010, I did not think twice because I really want to be part of this and show the world that Psoriasis is not contagious.
courtesy of likha camera club


 

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