Do you know that there is World Psoriasis Day? Yes, this is a worldwide event where people around the world celebrate the WPD to give voice to millions of people who have psoriasis and I’m one of those people who have psoriasis.
In the Philippines, we have National Awareness Week from October 23-29 since 2011 via Presidential Proclamation. But before that, PsorPhil is already celebrating World Psoriasis Day every year. People who have psoriasis, doctors, family and other supporters gather together to spread awareness about this skin condition.
This year, it will be celebrated on October 29, 2017 at San Andres Sports Complex. I haven’t joined all the parade but I was able to attend 2010, 2012, 2014 and hopefully this year, I can attend WPD event.
If you have psoriasis or if you know someone who has psoriasis, let them know that there is a PsorPhil group or different clubs around the Philippines where you can join so you won’t feel alone. I am a member of Asian Psorclub so if you live in Laguna, Cavite, Las Pinas, Muntinlupa, Paranaque or anywhere in South, you can join our group.
Anyway, since this is National Awareness Week let me inform you about psoriasis. I saw this flyer while I was cleaning. This is the flyer that we’re giving away during our Word Psoriasis Day walk.
Psoriasis in Numbers
Psoriasis affects 1-3% of the world’s population. (Clin. Dermatol. 2006;24;438-47)
1.8 million Filipinos may have psoriasis. Psoriasis affects adult males and females equally.
Studies have shown that 36-71% of patients with psoriasis have one relative who is also affected by psoriasis.
Up to 10-20% of patients with plaque psoriasis also experience psoriatic arthritis. Psoriatic arthritis develops in persons aged 35-55 years old.
Approximately 50% of psoriasis patients >65 years old have at least 3 comorbidities and -67% have 2 or more comorbities, -10% of patients have ocular signs (blepharitis, conjunctivitis) which is more common in men than in women. (R. Arffa, MD, emedicine.com 2009)
On the average, people with severe psoriasis have shorter life span of 4 years than patients without psoriasis, 3.5% years for men and 4.4 years for women. (Arch Dermatol. 2007;143(12):1493-1499)
Facts about Psoriasis
What is psoriasis?
Psoriasis is a common, chronic, relapsing, inflammatory skin disorder with a strong genetic basis. It is characterized be red, raised, itchy patches, with silvery scales, which can occur on any part of the body.
Psoriasis is not an infection and therefore is not contagious.
What causes psoriasis?
The exact cause of psoriasis is still undetermined. Psoriasis occurs when the immune system sends out faulty signals that speed up the growth cycle of skin cells. Again, psoriasis is not caused by an infection and not contagious.
What triggers psoriasis?
The development of psoriasis has undoubtedly a genetic component, but certain environmental factors may also trigger the disease. These factors may include physical trauma, infections, stress, drug, alcohol, and cold climate.
Is there a cure for psoriasis?
At present, doctors cannot cure the disease, or even modify the course illness. Current treatments do not affect disease activity. This means that if the disease is active, then relapse will occur as soon as treatment is discontinued whatever therapy is used.
However, psoriasis can be cleared with treatment that is currently available.
Other Important Information about Psoriasis
Psoriasis, being a common, chronic, complex inflammatory disease shares immunological features with other serious health disorders.
Recent studies suggest that moderate to severe psoriasis is associated with comorbidities like metabolic syndrome and its components (obesity, diabetes, hypertension, hypertriglyceridemia), cardiovascular disease, Chron’s disease, chronic obstructive lung disease, depression, and inflammatory arthritis among others.
Considering the link between psoriasis and comorbidities, it pertinent that a patient be aware of importance of regular follow-ups to their health care providers in order to be monitored for the said risk factors. It is also important for patients to adapt healthy lifestyle choices, including diet and exercise, to help prevent the development of comorbidities.
Aside from these serious medical disorders, people with psoriasis are faced with a psychological and emotional burden aggravated by lack of awareness regarding the disease. Many of them face discrimination in public places like the hair salon, riding public transportation, workplace, swimming pools, and the like. It is important that people be made aware that psoriasis is not contagious and cannot be passed on by physically interacting with a person with psoriasis. Psychological and social support from family members, friends and support groups are very significant in decreasing the isolation of patient feels and increasing his/her confidence in living well with psoriasis.
Showing posts with label psorclub. Show all posts
Showing posts with label psorclub. Show all posts
October 26, 2017
January 19, 2017
Unfolding Psoriasis in the Philippines: A Burden of Disease Survey
This survey aims to collect data from Filipinos living with psoriasis above 18 years old to better understand experiences in diagnosis, management, and quality of life impact. This survey is developed for the Psoriasis Philippines in collaboration with Philippine Dermatological Society and Philippine Rheumatology Association supported by Novartis.
Specifically, the survey aims to:
1. Understand the rational, personal and emotional impact of psoriasis;
2. Quantify patient perspectives on clear skin achievability; and
3. Provide evidence for the significant impact of psoriasis on individuals.
The data will be used to raise awareness on psoriasis in the Philippines and to develop a policy paper for psoriasis treatment and support.
If you have psoriasis, please answer the survey. If you know someone who has psoriasis, please share this post.
Click here to answer the survey.
Specifically, the survey aims to:
1. Understand the rational, personal and emotional impact of psoriasis;
2. Quantify patient perspectives on clear skin achievability; and
3. Provide evidence for the significant impact of psoriasis on individuals.
The data will be used to raise awareness on psoriasis in the Philippines and to develop a policy paper for psoriasis treatment and support.
If you have psoriasis, please answer the survey. If you know someone who has psoriasis, please share this post.
Click here to answer the survey.
December 14, 2013
Asian PsorClub Christmas Party
Before I joined Bazaar, I already said yes to our Asian PsorClub Christmas Party so even though I’m super busy with the bazaar I took time to attend the party last Saturday because I seldom see them in a year.
Again, it was a simple get-together in a resort in Los Banos, Laguna. Since I’m busy and I have no time to cook or bake, I just ordered pansit for my potluck.
The traffic was so bad and nakatulog na sa biyahe ang aking anak. He has cough so he did not swim, he just played billiard with his dad. #ibangversion
December 27, 2012
Asian PsorClub Christmas Party
Christmas
season is indeed a stressful season and stress is not good to me so I don’t
attend all invites that I received. As much as I want to attend I have to
prioritize things and attending events is not my top priority. I don’t want to
waste my time travelling from one place to another because of the traffic.
This
Christmas season, I only attended two events and one of them is Asian PsorClub Christmas Party. I missed
the November get together because of my last minute preparation for our Hongkong-Macau trip.
It
was just a simple get together but we had fun eating and singing. (oops, I did
not sing.) We brought exchange gift and white elephant gift.
Photos
from our Facebook Group.
October 23, 2012
P.L.A.N.E.T.
I was one of the lucky participants of P.L.A.N.E.T or Psoriasis Livelihood Assistance Network and Training. If you’ve been reading this blog, you know that I have psoriasis and I’m a member of PsorPhil group. One of the visions of PsorPhil is to help and support people with psoriasis. For your information, we have members that are unemployed, they were either terminated or they can’t find a job because of the skin condition so it is PsorPhil aims to help members by providing livelihood assistance and training. PsorPhil hopes that this training can help them to earn.
I was able to attend the Basic Web Designing and Basic PC troubleshooting training at Hope Christian High School in Sta. Cruz, Manila last Oct. 13 and Oct. 20, 2012. It was half day training so don’t expect that I can do web design or troubleshoot computer already but at least I’ve learned the basics. Now, I know and understand some html and css terminology and I’ve tried to assemble and disassemble computers. I just hope there’s a continuation of this training.
This was the second livelihood assistance that I’ve attended the first one was soap making, jewelry making and loadingbusiness.
Photos from PsorPhil group.
October 21, 2012
World Psoriasis Day 2012
Leo
Pharma Asia’s Top Executive to join National Psoriasis Week
Ricky Teo, a top-ranking
executive of LEO Pharma-Asia will grace this year’s celebration of the National
Psoriasis Awareness Week at the Kaban ng Hiyas of the Mandaluyong City Hall.
The annual event, a testament to the importance of Presidential Proclamation No. 179 declaring every last week of October as the National Psoriasis Week, will carry the global theme “Put Psoriasis on The Agenda Now” for this year’s celebration.
The annual event, a testament to the importance of Presidential Proclamation No. 179 declaring every last week of October as the National Psoriasis Week, will carry the global theme “Put Psoriasis on The Agenda Now” for this year’s celebration.
Despite
his hectic schedule, Teo, Leo Pharma-Asia’s Area Director for South Asia, will
join the national events as a show of support for the region. Teo is
responsible for Leo Pharma’s markets in the Philippines, Malaysia, Thailand,
Taiwan, Singapore, Hongkong, Vietnam, Indonesia, and Sri Lanka.
Teo
will discuss the topic of the stigma of psoriasis why a great number living
with it take their own lives to escape the suffering that it entails and why is
this the only solution they see. He will also post the question of why in a world
where beautiful and clear skin is the benchmark of beauty, psoriasis patients
are being treated negatively because of the inflamed, thick red scaly lesions
found in their skin.
Most
people think that the physical symptoms of psoriasis patients are contagious
and people tend to ostracize patients with psoriasis. These instances lower the
self-esteem of the patients and they shy away from the public, hiding from the
judging eyes of the outside world. They hide in their homes and most patients
fall into depression.
About
30% of Psoriasis patients develop painful and debilitating psoriatic Arthritis.
Their quality of life is lessened and can’t do some of the simple things that
most people take for granted in their daily lives. Recent global studies also
show that psoriasis patients are at higher risk of developing other co-morbid
conditions such as hypertension, diabetes, cardiovascular diseases, Crohn’s
Disease, and other chronic conditions.
Psoriasis
Philippines, along with Leo Pharma and Teo, advocates for the Filipinos with
psoriasis who are estimated to be between 1 to 2 million. Every year Psorphil
celebrates World Psoriasis Day together with 64 other countries.
This
year's Psoriasis Awareness Week is also supported by Pfizer Phils, Janssen
Pharmaceuticals, and Galderma Phils. and Pascual Laboratories.
August 06, 2012
Asian PsorClub goes to UK
We’ve been planning this since May and finally, last Sunday we went to UK. We were so excited because this is the second out of town trip of our group so rain or shine off we went to Tagaytay. Yes, you’ve read it right; we went to UK or Ukay-Ukay in Tagaytay. Hehe! My first and last experience of Ukay-Ukay was in Baguio, I was still in college during that time.
We always visit Tagaytay but I have no idea that there was Ukay-Ukay so after several years; I’ve experienced Ukay-Ukay again. Someone suggested this place because I need gown for Mr. & Ms. PsorPhil event and I don’t have any, the gowns that I have won’t fit me anymore. She said, she was able to find gowns in Ukay-Ukay for their costume party. I also received a gown from one doctor but unfortunately, the gown is too small for me. Huhuhu! (sexy ni Dra. and I’m fat). But I really appreciate the gown because even she doesn’t know me, she gave me a gown, thank you and God bless you! Anyway, I still have two weeks more to buy or rent. Good luck to me!
Let’s go back to Ukay-Ukay! If you have very limited budget, I can definitely say that your money can go a long way because you can find clothes or stuff for as low as P5. I bought a lot of stuff and one of them is jacket, I bought one for my son P100 (Oshkosh) and one for me P50 (Hang Ten). A good steal because we will only use this for our upcoming trip. I don’t want to spend money for something that I will only use once.
If you are rich, this post is not for you but if you are a frugal shopper you can find this Ukay-Ukay before you reach Tagaytay Rotonda. Landmark is McDonalds. Happy shopping!
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